I thought it was worthwhile to post a few of my favourite CFS resources.
CFS Forum: The Prohealth forum, www.prohealth.com/me-cfs/blog/boardhome.cfm This is my favourite CFS forum on the internet, mainly due to the high number of daily posts. The forum members are more than glad to answer any questions you have and share various pieces of advice. I find many other CFS forums on the internet lack active member, hence your questions will likely go unanswered, or only answered by one person.
The Prohealth website also has a chat facility (similar to msn), where you can chat to other people about CFS. This is found at www.prohealth.com/chat/index.cfm
The final feature of the Prohealth website that I like (however haven’t used yet) is the store which is found at https://www.prohealth.com/shop/index.cfm The store contains many useful CFS related products including the new ‘Hydrogen Sulfide test.’ This test detects the presence of H2S in your urine. Although it is not a diagnostic tool for CFS, it does show if there is an abnormality within your urine. Dr De Meirleir, claims that 80 to 90% of patients that are sent to him, come up as positive to the H2S test.
Symptom Analysis Program: www.endfatigue.com/treatment_options/Online_program.html. This is a website that requires you to complete a list of questions and consequentially, it spits out a treatment protocol to target your specific case of CFS. There is a free version and a paid version. It is helpful to have a list of your blood test results to maximise the accuracy of the symptom analysis program.
Shop: www.iherb.com This is where I buy about three quarters of my natural products to treat my CFS. It turns out that it’s cheaper for me to order from iherb (in the US) and send products over to Australia than for me to buy products at my local pharmacy. They do have a wide range of CFS-specific products including the ‘Energy Revitalization System’ and D-ribose powder. Remember that prices are in US on the screen, hence you will need to work out the conversion amount, depending on where you live.
General CFS news: www.sacfs.asn.au This is my local CFS group, the ME/CFS Society of South Australia. The website, averages over 2.5million hits per year and is regularly updated with CFS specific news. It also has (in the right hand side column) a PDF file for detailing some ME/CFS treatment guidelines for GPs. The website also has links to the various other ME/CFS societies around Australia.
CFS doctor list: www.co-cure.org/Good-Doc.htm This is a list of CFS doctors. It is by no means complete list (it only shows 4 CFS doctors for the entire Australia!) It does however show a lot of doctors for certain regions, for instance over 40 doctors in California.
CFS book: From Fatigued to Fantastic by Jacob Teitelbaum. This has to be one of the best CFS resources available and I recommend that all CFS patients own a copy. I ordered mine in through the local book store however it can easily be ordered online. From Fatigued to Fantastic is a very thorough book that will never leave you without ideas on what to try next for your CFS. The protocol that it mainly focuses on is called the ‘SHINE’ protocol.